That "Break" Can Come ANYTIME Now
Big I had her follow-up finger stick today. The nurse asked Mr. BBM to put pressure on her finger for 30 seconds after. When he released, her finger began dripping again. She also had two petichial spots in her mouth that weren't there on Friday. Despite the platelet reading being better today, the doctor is convinced that she does indeed have ITP. I spent the weekend thinking this was a temporary set-back and today I just can't deal with any of this.
She has to have more blood work done on Wednesday and they are sending all of her results to a specialist at a hospital an hour away. She can't go outside for recess, participate in gym class, or take karate for the time-being. She's signed up to play t-ball with her best friend and the doctor said we'll have to wait and see whether or not she'll be able to play.
She's back at school today and I just want to be there, shielding her from anyone who might run into her or hurt her in any way. I can't imagine being told I couldn't go out to recess or play in gym class as a kid. She's going to be devastated. I am just reeling today with the weight of it all and just don't know what to do with myself.
Hugs.
Posted by: Nat | March 10, 2008 at 11:47 AM
On the other hand if it is ITP it should pass in a year My best wishes to you all.
see www.nhlbi.nih.gov/health/dci/Diseases/Itp/ITP_WhatIs.html
Posted by: Rachel Green | March 10, 2008 at 12:36 PM
Prayers for all of you!
Posted by: Lisa | March 10, 2008 at 01:22 PM
Hugs and prayers.
Posted by: Calista | March 10, 2008 at 02:04 PM
I'm so sorry, BBM. I hope everything turns around soon. You are in my thoughts.
Posted by: sizzle | March 10, 2008 at 03:00 PM
I'm so sorry. What a kick in the head. I will be thinking of you and your little girl -- and hoping for the best.
Posted by: Lydia | March 10, 2008 at 04:02 PM
We're holding you in our thoughts and prayers, sending our love.
Posted by: Papa Bradstein | March 10, 2008 at 09:57 PM
Hugs!!!
Posted by: jody | March 11, 2008 at 03:21 PM
I said this already, but know that her teachers are watching her carefully and will love her and help her until she is well.
Posted by: Renovation Girl | March 11, 2008 at 07:25 PM
Be strong! These trials are but for a time, and if you make good use of them, you will be better off for them. In the meantime, you obviously have the thoughts and prayers of many to carry you and yours.
Posted by: Jerry | March 12, 2008 at 08:32 AM
Thinking of you lots and sending ((((hugs)))). I know first hand what its like to have a child go through something critical, and unknown, and scary, and it changes your whole world. Wish I lived close enough to bring over a casserole and some hankies (a southern tradition for difficult times). Let us know if there is anything we can do from afar...
Posted by: Topsy-Techie | March 12, 2008 at 10:22 AM
Hugs.
I don't know if it will be useful to you, but Flea at One Good Thing ( http://buggydoo.blogspot.com/2008/01/what-do-you-think-life-is-trying-to.html ) has a son with ITP, and several posts on the subject.
Posted by: PerpetualBeginner | March 12, 2008 at 12:22 PM
I too am sending hugs your way. I'm very familiar with ITP because my mother has it.
Posted by: Miss Chris | March 13, 2008 at 11:18 AM